So I've been really, really tired for about two weeks now (like really struggling tired), and what little energy I have gets used up pretty quickly because, you know Fibro-fatigue is weird. Well today I finally got the energy to go out and grab some lunch (I love eating lunch on a nice sunny patio!) and up to that point, everything was going great. I got myself together, drove myself to the place, and had some lunch. So far, so good. Then, still feeling alright, I decided to pop in the shop next door, then, as I was looking at the scarves, I was suddenly so tired all I wanted to do was lie down right there in the store- not exactly an ideal situation.
Now at this point, I still have to walk back to my car and drive myself home- which is going to take all the energy I have left. So I luckily get it back to my place safely, but as soon as I got there I passed out for almost four hours- and who knows what that did to my sleep schedule?
The fatigue that comes with Fibromyalgia can both keep you tired for days and weeks on end, as well as strike out of nowhere- and add the other symptoms that come with Fibro on-top of that and you can see how leaving the house can become both difficult and fairly scary. What if you're out and suddenly your symptoms strike and you are too unwell to get home?
This is a very real concern for many Spoonies, and it's not something that most people understand. Today I had to assess whether or not I could safely take myself home, and it's not the first or the last time I'll have to do this.
To my fellow Spoonies: know there are a lot of us out there who understand this fear, you're not alone! And if you have a friend in your life who has Fibro-fatigue, who or struggles with leaving the house because of their symptoms, maybe this story will help you empathize with their struggle a little more. If you want to go out with them and they hesitate, maybe ask them if there is something you can do to help them be more comfortable with the outing. Maybe offer to drive, or help them get ready if that will help, but an open dialogue will show them you care and want to understand their struggles and help them enjoy your time together- and that's really the best thing you can do for everyone in your life, but can be especially touching to the chronically ill who often feel misunderstood and dismissed.
-FSC Founder and Fabulous Fibro-Fighter-