This week I decided to go to a Love Languages workshop/discussion lead by our local G3 branch (Gather/Grow/Go) and it lead to several moments that left me feeling really good about being open about my Fibromyalgia- which, let's face, is almost never the case. Usually I feel less-than, judged, defeated, or any number of unpleasant emotions after getting real about life with Fibro, but I'm new to the area and am looking to build relationships, and I was legitimately interested in the topic, so before I went I took a moment to set the intention of being open and honest during this talk- and I think it made all the difference.
You may remember that The Fibro-Strong Collective celebrated the 20th annual Fibromyalgia Awareness Day with a Fibro-Awareness email campaign - and we've had a few responses from two of our home Senators here in California, Senator Feinstein and Senator Harris!
We have decided to share their responses with you below; it's been so nice to hear that there are people in high places working on our behalf - we are not alone, and with efforts like email campaigns, we won't be forgotten! See their responses below:
Today is the 20th Anniversary of National Fibromyalgia Awareness Day, a day dedicated to raising awareness around Fibromyalgia. To celebrate, The Fibro-Strong Collective implemented a Fibromyalgia awareness email campaign!
,We emailed a lot of people, and hopefully spread some awareness in the process, and we urge you to do something similar today! Share awareness posts on social media, start conversations with your friends, and if you want to do an email campaign- do it! In fact, we'll share the basics of our campaign with you to get you started!
We emailed a lot of government officials, and you can find your government officials using the Town Hall app on Facebook or on https://www.usa.gov/elected-officials, that's usually a good place to start. Also look for leaders in the industry, influencers, committees, organizations, or anyone else that would matter for the subject of your particular email.
Apps pretty much run our lives these days - and when you have a chronic illness like Fibromyalgia, apps can definitely help you manage that too. Here are a few of my favorite apps that I use (or have used) to help me manage my battle with Fibromyalgia: