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Travel & Fibromyalgia

11/25/2018

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Like a lot of people, I traveled to see family for the Thanksgiving holiday. I flew from the rain and fires in California to the cold and possibility of snow in Detroit, Michigan.

This is required some preparation as I don’t don’t do well in cold, but so far wearing four layers seems to be working- but it’s supposed to snow on the day I leave so keep your fingers crossed for me!

As much as I love to travel, it isn’t easy with Fibromyalgia. Being cramped in a plane and sleeping on air mattresses or sofas or lumpy hotel beds isn’t exactly ideal. Plus, there’s activities and lots of action you don’t want to miss out on, so you try to force yourself to do more than you generally would, but don’t want to overdo it because you have to get back to work and life after the vacation is over and don’t want to work yourself into a flare- it’s a difficult rope to walk.

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It's More Than Just a Lack of Energy - but That's a big Part of it (Plus Spoon Theory Explained)

11/18/2018

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Fatigue is a symptom I suffer with, and I suffer with it often, but for the last few weeks my energy levels have been lower than usual. I'm just tired after being tired, while being tired. With chronic illness, we’re constantly walking the tightrope between what we want to do and what we have the energy to do- and it's not a fun place to be.

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Gratitude Post

11/4/2018

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I am one of those people that firmly believes in the importance of expressing gratitude, and I am very grateful to have been able to do so much lately. My brain fog hasn't been that bad so I've been able to read a lot, which is something I really love to do, and I've also been able to do some very much needed organizing and planning. My fine motor skills have been pretty good and my hands haven't been very shaky so I've been able to do some cool crafting.

Now don't get me wrong, I haven't been symptom free. My back pain and fatigue levels have been high, but I feel like I've been able to do some things I haven't been able to do much of in the last few months, and I am grateful for it. 

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