I want to talk about something I posted on our social media sites this week, because I think talking about the intricacies of living with chronic illness is important. A lot of time, people with a chronic illness or chronic pain will not do things because they know doing things will cause their symptoms to get worse. But you know how sometimes you have to do things even though you know doing it will cause your symptoms to flare? Or how random things will make your symptoms flare up? Or how you get a flare for no reason at all? So... why not occasionally do things that you want to do even though you know you’ll get a flare for doing it? Because as much as I avoid things for fear of making my Fibromyalgia symptoms worse, I also do things even though I know without a shadow of a doubt, I'll pay for it with a flare.
Maybe my inner rebel just never grew up, maybe I'm just determined to not let my diagnosis run my life, but last weekend I said “hell with it, I’m doing it anyway” when I got a chance to do a trapeze day- and I’m not gonna lie, every single muscle hurts and I messed up one of my toes and my symptoms are flaring, but it was such a fun experience and I don’t regret it at all!
I spend my life in pain, and sometimes for me, it’s about doing things anyway- because if I’m going to hurt anyway, flare anyway- I may as well have a few fun stories to tell, right?
Check out this story (including pics of me swinging in the air on my trapeze day) on our Facebook page, and share your own stories of fun things you're proud of yourself for not passing up with us in the comments!
- Heather, Fabulous Fibro-Fighter and FSC Founder
I like to keep busy while I’m resting. Yes, I know that sounds like a contradiction in terms, but here me out: I have been crazy busy lately, and I know that I need to rest so I can continue to do all the things I need to do, but resting can be so boring! One of my favorite “resting but keeping busy” things to do is craft. Pinterest has changed the craft game, and I couldn’t be happier! Like I said, I have a hard time resting and often get bored or restless, but I am also more than happy to sit and chill and try to make that cool thing I saw on Pinterest- which is easier on my body than other things so I call it a win.
Yesterday I fell on cobblestones, and today I’m in bed- and I’ll probably be here for a while; I feel like I got into a car accident. Someone who didn’t have Fibromyalgia would maybe be a little sore after falling on a hard uneven surface, but probably wouldn’t be laid up in bed for days. A lot of times, even a small physical injury exacerbates Fibromyalgia symptoms or can even cause an all out flare, which isn’t great for obvious reasons.
As someone who has recently moved to a new town, is trying to figure things out and find my groove - I have been out a lot more than I usually am, and I am paying for it. Having Fibromyalgia means things are different for me now. Planning on going out means also planning some time in. I spend a lot of time at The FSC talking about self-care, and incorporating it into your regular routine, and it's something that a lot of people with chronic illnesses do- and I am no exception. I know if I do something, I'm inevitable going to have what I call an "activity hangover" which will require some good old-fashioned rest time.